A platform.

A community.

A movement.

We share our stories.

Check out the Project Lymph profiles.

Photo: Performance Health

We push for answers and encourage advocacy.

Photo: LympheDIVAs

We facilitate conversation and promote community.

Check out the Project Lymph discussions.

Photo: LE&RN

We represent and enrich children with lymphedema.

Check out the Lymphie LARA activities.

Photo: ILWTI

Elevate your limbs. Elevate your life.

What is lymphedema?

Lymphedema is defined as the localized swelling of the body caused by an abnormal accumulation of lymph.

Is that all?

Well, no. Lymphedema is caused by a blockage in the lymphatic system, which is part of the immune and circulatory systems. The condition is most commonly caused by lymph node removal/damage due to cancer treatment; this is secondary lymphedema.

One can also be born with lymphedema; this is primary lymphedema.

Lymphedema is chronic, lasting many years, if not a lifetime.

What’s the cure?

That’s the issue. Right now, there is no cure.

Treatment (i.e. consistent exercise, wrapping, massage, and compression) can help lymphedema patients lead more mobile, normal lives, but the condition cannot be cured permanently.

“The best available treatment for lymphedema has been massage and compression, though this only provides temporary relief of pain from the building up of lymph fluid behind a blockage.”
– Stephen Feller

Join the conversation.