Author: projectlymph

Amy Rivera

The following was submitted by Amy Rivera (@thisisamyrivera): What has your experience been with lymphedema? I was born with primary lymphedema. It started from birth. The entire right side of my body was twice the size of my left side. The swelling went down after a few days except for my right leg, which stayed […]

Cam Ayala

The following was submitted by Cam Ayala (@camronayala): What has your experience been with lymphedema? I was born with lymphedema but my swelling did not start until I was 11 years old after I had a bone biopsy on my right knee. My swelling is concentrated to my right leg slightly above the knee up […]

Mary Kastelberg

The following was submitted by Mary Kastelberg (@livelovelymphie): What has your experience been with lymphedema? I have primary lymphedema in my right leg. I started to see an increase in swelling in my thigh when I was twelve years old, and after six months of doctors appointments, MRIs, and CT scans, I was finally diagnosed […]

Heather Evans

The following was submitted by Heather Evans (@bodyworkrx): What has your experience been with lymphedema? I’m a certified lymphedema therapist. I was first trained in 1997, then attended the Foldi Clinic advanced class in 2008. I worked full time as a lymph therapist in and outpatient and inpatient hospital from 1997-2002, when I started my […]

Joshua D. Morrow

The following was submitted by Joshua D. Morrow (@lymphedema.dude.joshua): What has your experience been with lymphedema? I was 23 when I developed lymphedema. I thought I’d sprained my left ankle playing basketball. I would spend 3 weeks trying to care for it like it was sprained with the swelling getting worse. By the time I […]

Berlange Presilus

The following was submitted by Berlange Presilus (@bellenge): What has your experience been with lymphedema? My experience with lymphedema has not been so bad at all in comparison to those with primary lymphedema. I developed lymphedema right after surgery. Those surgeries were intended to help with Klippel Trenaunay Syndrome. How does lymphedema impact your everyday […]

Monique Samuels

The following was submitted by Monique Samuels (@chronicallymoni): What has your experience been with lymphedema? At the time I am writing this I will have lived with lymphedema for 22 years. It blows my mind to think of that 12 year old version of myself devastated, hopeless and lonely. When my lymphedema developed I was […]

Jessica Sousa

The following was submitted by Jessica Sousa (@beardette39): My name is Jessica Sousa, I am 31 years old and I live in the amazing state of California, specifically the Monterey bay area. What has your experience been with lymphedema? Earlier this year I was diagnosed with Primary Lymphedema in both of my legs, yea! I […]